What is Apraxia?

Imagine that you want to invite a new friend to a party.  You’re a little bit nervous, and you have trouble getting the words out.  Your mouth doesn’t want to work at all.  You stutter,  you mumble, your speech is “bumpy” and halting, your voice is too loud or too soft, and you leave endings off of words all together.  The more self-conscious you feel, the harder it becomes.  After what feels like a painfully long time, you finally get out your question… and are then asked to repeat it because she didn’t understand what you said.

Or imagine that you’re asked to fill out a simple form, asking for basic information such as name, phone number, and address.  You’re a teenager and you’ve been reading and writing for a decade.  You know how to make a 5, or an 8, or spell McGrail, but a connection is lost between your brain and your fingers, and writing is difficult and slow… your words too big for the box, and your penmanship hard to decipher.

Or think about shopping for shoes.  You’re faced with pair after pair with laces, so many options, so many choices… and you look at them all, try on several pairs, but ultimately end up choosing one of just a few that slip-on.  Because even though you CAN tie, the process is arduous, and you – like everyone else – want to be able to just toss on your shoes and go.

Now imagine that because of all of the above, people make automatic assumptions about your intelligence, about your future, and about your other abilities.

That’s apraxia.

In the simplest terms, it’s a motor-planning disorder.  Your brain correctly tells your mouth (or your hands, or any other part of your body) what to do, but there is a breakdown in the motor planning necessary to complete the action, making said action difficult or in some cases impossible.  Apraxia behaves differently in each person, and can affect any motor system.   Some people with apraxia may have trouble with the large motor coordination necessary to ride a bike for example, but not struggle at all with handwriting.  The examples I gave above are specific areas that Spencer (16 at the time of this writing) finds most difficult, but we’ve been told that he likely has other, more subtle apraxias as well.

I am so thankful that I’m able to unschool all my kids, but particularly Spencer.   I can’t think of any other type of education, or life, that would be more respectful and uniquely individual to his needs while still keeping his amazing self-confidence and tenacity intact.   Apraxia doesn’t define him, and he knows that.

spencerawesomeshirt

Still, it’s frustrating both for him as an individual and for us as his parents to deal with something that is in most cases not even on anyone’s radar, and poorly understood when it is.

What can you do to help?

Next month, our entire family of six is participating in a walk to raise money and awareness for this cause that is so deeply personal and important to us all.  Any contribution you could make (even if it just means passing on the link to share with others) would be so appreciated.

Click here to view our fundraising page.  (Edited to reflect our current page) We thank you, and Spencer thanks you.

*Please note that this post was written and posted with Spencer’s approval and blessing, because he wants to get the word out.  I wouldn’t have posted it otherwise.*


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8 Comments

Filed under apraxia, Spencer

8 Responses to What is Apraxia?

  1. Krista

    I have a 17 year old son that struggles with these issues as well as having Asperger’s. Thank you so much for writing this and to Spencer for being willing to get the word out. Best wishes with the fundraising and the walk. =)

  2. First of all, Sarah and I think Spencer is AWESOME. He is a wonderful guy and a great friend to Sarah.

    Second of all, I now think he’s even more awesome. We have a few similar issues in our family – not to that degree, but definitely issues with motor planning and executive functioning – and it’s been INCREDIBLY hard as a parent to see people make judgments based on it. Some of the comments are painfully cruel. I am thrilled to see Spencer – and your whole family – not only willing but happy to share the story and raise awareness!

    • Aw, Joan. Thank you. Spencer feels the same about Sarah! She’s been a daily topic of conversation. He’s been thrilled to have made a new friend. And we think he’s awesome too…. though we may be biased. 🙂

  3. Rou

    Ah, I’m 18 and I have an issue that’s somewhat similar in nature, although for me it only affects speech. I literally can’t talk when I’m stressed, though it takes quite a lot of it for it to kick in so hard I can’t force myself to speak at all. Unfortunately there have been a few teachers in my life that had such an effect on me. And so I still remember that when I was like 8 I was grounded because I brought home a note from the teacher saying I wasn’t answering her questions and I was ignoring her. Well, I wasn’t, I was just scared. And this teacher I have now. When she asks me a question, my mind goes blank and it’s a tremendous effort to string together even a simple sentence.

    Thanks for the posts, your blog is always a bit of reassurement (why does Chrome underline this word, lol) for me.

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  5. BrendaH

    I have 2 grandsons, 3 and 5, who are beginning their walk on this path. Interestingly enough, their mother, my daughter, could not tie her shoes or ride a bike until she was at least 7 or 8. She is dyslexic, but not apraxic, with a very high IQ. My grandsons seem to have more coordination, and with the shoes today, there hasn’t been much need to learn to tie. But there is a need to speak, and it breaks my heart when I’m not able to understand what they are trying to tell me. We walked the Dallas Apraxia walk last year, and plan to do so this year. Bless all these children. They all deserve a voice!

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