Category Archives: apraxia

What is Apraxia?

Imagine that you want to invite a new friend to a party.  You’re a little bit nervous, and you have trouble getting the words out.  Your mouth doesn’t want to work at all.  You stutter,  you mumble, your speech is “bumpy” and halting, your voice is too loud or too soft, and you leave endings off of words all together.  The more self-conscious you feel, the harder it becomes.  After what feels like a painfully long time, you finally get out your question… and are then asked to repeat it because she didn’t understand what you said.

Or imagine that you’re asked to fill out a simple form, asking for basic information such as name, phone number, and address.  You’re a teenager and you’ve been reading and writing for a decade.  You know how to make a 5, or an 8, or spell McGrail, but a connection is lost between your brain and your fingers, and writing is difficult and slow… your words too big for the box, and your penmanship hard to decipher.

Or think about shopping for shoes.  You’re faced with pair after pair with laces, so many options, so many choices… and you look at them all, try on several pairs, but ultimately end up choosing one of just a few that slip-on.  Because even though you CAN tie, the process is arduous, and you – like everyone else – want to be able to just toss on your shoes and go.

Now imagine that because of all of the above, people make automatic assumptions about your intelligence, about your future, and about your other abilities.

That’s apraxia.

In the simplest terms, it’s a motor-planning disorder.  Your brain correctly tells your mouth (or your hands, or any other part of your body) what to do, but there is a breakdown in the motor planning necessary to complete the action, making said action difficult or in some cases impossible.  Apraxia behaves differently in each person, and can affect any motor system.   Some people with apraxia may have trouble with the large motor coordination necessary to ride a bike for example, but not struggle at all with handwriting.  The examples I gave above are specific areas that Spencer (16 at the time of this writing) finds most difficult, but we’ve been told that he likely has other, more subtle apraxias as well.

I am so thankful that I’m able to unschool all my kids, but particularly Spencer.   I can’t think of any other type of education, or life, that would be more respectful and uniquely individual to his needs while still keeping his amazing self-confidence and tenacity intact.   Apraxia doesn’t define him, and he knows that.

spencerawesomeshirt

Still, it’s frustrating both for him as an individual and for us as his parents to deal with something that is in most cases not even on anyone’s radar, and poorly understood when it is.

What can you do to help?

Next month, our entire family of six is participating in a walk to raise money and awareness for this cause that is so deeply personal and important to us all.  Any contribution you could make (even if it just means passing on the link to share with others) would be so appreciated.

Click here to view our fundraising page.  (Edited to reflect our current page) We thank you, and Spencer thanks you.

*Please note that this post was written and posted with Spencer’s approval and blessing, because he wants to get the word out.  I wouldn’t have posted it otherwise.*

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Unschooling: My moment of doubt

The room was nearly silent. The awkwardness was palpable. Even the speech therapist … bubbly, outgoing and friendly until just a few weeks prior, absolutely refused to look us in the eye, instead staring down at some imaginary spot on the table. I remember looking at the clock – a standard issue, one-in-every-room school clock – and watching the second hand slowly sweep around until I heard the audible click that signified that another excruciatingly long minute had gone by.

Hop on over to Christian Unschooling to continue reading.

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Harry Potter, Hiking Shoes, and Vacations

Daniel Radcliffe, the actor who played Harry Potter, has apraxia. I know very little else about Daniel Radcliffe. I don’t know how old he is, I don’t know what other acting he’s done, I don’t know his favorite ice cream flavor. I read a little interview with him once though, and I will always remember the apraxia, because that is the one diagnosis we received for Spencer… a whole decade ago, back when we were still in “the system.” I think it’s cool that he decided to speak out about it, and Spencer thinks it’s cool that it’s something he shares with a celebrity.

In short, apraxia is a motor-planning disorder. With Spencer, it is most noticeable in his speech (verbal apraxia), but it can also affect other motor skills to varying degrees. Things like tying shoes and handwriting (two things that Daniel Radcliffe specifically mentioned) can be difficult.

The first couple of years, I researched until I could research no more. I’m truly glad that I learned what I did about apraxia, because it helped me to understand, and understanding is always a positive thing. But just as positive – if not more so – is the fact that I no longer spend my time thinking about it. Some of the beauty of homeschooling is that your kids are not bound by labels. There’s no one trying to “fix” them, no one trying to make them fit their octagon shapes into round holes, no one trying to get them “caught up” to the herd. Spencer, like the rest of my children, can BE. His not being able to tie well or write neatly are not an issue unless he decides they’re an issue.

A couple of weeks ago, we returned home from a week-long trip to Colorado. It was an odd trip… a frustrating trip… a fun trip… a sad trip. A stomach bug took down three of the kids, and teased the adults as well. I recognize that as stressful as it was at the time that it’s just an unfortunate part of life. Lousy timing to be sure, but we didn’t let it ruin the vacation. We hiked, we went on a mountain drive, we enjoyed the hot springs, and we toured a wildlife sanctuary. We actually had a few days of good health in between sick days, and did not take the beauty of the area for granted.


The whole album is here.

When we returned back home (yes, I’m still on the subject of Harry Potter and apraxia. Stick with me), we desperately needed to go sneaker shopping. The younger boys’ were getting too small, Spencer’s were falling apart, and my trusty old Skechers that I’ve had for around 6 years had finally decided to give up the ghost and left their soles on a mountain somewhere. They never even made it home, deposited in the trash bin before we left the resort.

Just like Daniel Radcliffe, Spencer usually chooses non-tie shoes. He seemed to hesitate this time though,and browsed through some of the lace-ups as well. We told him that if he wanted to get shoes with laces that we could help him practice some more, or we could get those things that go on the ends so you don’t have to tie, and can just slip them on and off. We talked about Harry Potter again. He asked me, “Can Harry Potter do the first part? Because I can.” I told him I didn’t know. Still undecided about the shoes, he decided to take a day to think about it, and we’d go back when he made up his mind.

That night, I was laying in bed thinking about Spencer and shoes and Harry Potter.

This is what moms do…. we lay in bed when we can’t sleep and think about our kids, and how we can help them solve problems. I thought about the question he’d asked me, and it suddenly occurred to me that if he could do the first part (the part where you cross the laces) that he could just do it again with the “rabbit ears” method, instead of struggling with the “loop, swoop, and pull.” I was so excited that I had to force myself to stay in bed instead of getting up then and there in the middle of the night.

The next morning I told him what I’d realized, and showed him what I meant on my own shoes. He sat with my shoes for just a few minutes, and ultimately showed me this:


He was more excited than I’ve seen him in a long time, and told me that now he could choose any kind of shoes he wanted, without worrying about it. I loved for him that he found a way that was easier for him, but more than that I loved that it all happened when he decided it was important to him. I loved that it was never a battle, never an issue… that it happened like everything else should happen: naturally, in its own time, in its own way.

That is why I do what I do.

That weekend, he requested a smoothie to celebrate (Strawberry Surf Rider, thank you very much), and we took him back on that shoe-shopping trip. I don’t think he really did want a pair of tying shoes after all, because he ended up choosing – and was very happy with – another pair of slip-ons. I suspect that he just wanted to know that he could tie if he wanted to. And he can.

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