Category Archives: about me

Kind Words That Really Helped – Part Five

bipolar

If you missed them:  Part One, Part Two, Part Three, Part Four

June 1, 2016

In case anyone ever opens up to you about a mental illness (and please believe me when I say that it takes an ENORMOUS amount of trust in you to do so), here are some of the perfect, and encouraging, and loving responses that my friends gave me when I told them.  Some knew that I’d been struggling, and for others it was completely out of the blue.

“That sounds really, really hard.  Please let me know how I can best support you.”

“I am holding you in my heart.”

“I am happy you were able to get help.  Take it one day at a time.  I’m here if you ever need to talk.”

“I am so glad that you have something to work with.  Onward and upward toward sunshinier days.  This is the start of a brand new chapter for you.”

“Thank you for trusting me to tell me.”

“I’ll be thinking of you.  Please keep me posted.”

“I’m so sorry that you’ve been having such a hard time, and I’m really glad that you were able to seek out help.  I’m so proud of you for taking care of yourself.”

“Oh my goodness, that is a lot.  A blessing to know what you’re dealing with, and to be able to start treating it.  I’m here for you if you ever want to talk.”

“I love you.”

*I could add to this list greatly from all the kind and wonderful messages I’ve gotten since I published my first post about this, but I won’t.  These were the earliest ones, so I want them to stand.  The only thing I’ll add came from just one single person, and I thought it was the greatest thing ever.  She’d written me a very sweet message of encouragement, let me know she was thinking of me, and closed it with “No response needed.”  I responded anyway, but it was so appreciated, and was a very, very cool way to take the pressure off at a time when responding to emails, even kind and wonderful ones, took a lot.*

My personal favorite came from my 8 year old daughter (who is mature beyond her years, and has one of the biggest hearts of anyone I know)  Being the youngest, her level of understanding isn’t quite that of the boys, both because of her age, and because I’m of course a little more selective about what is shared in her presence.  But there’s only so much you can shield.  She walked in on me crying one day, and set about making me this:

notefromtegan

“Everything is going to be okay. Even if things don’t feel okay right now, I promise that everything is going to be okay.”

My heart.

———————————————————————————————————————

It’s tempting to close with a list of well-meaning things that absolutely did NOT help (that list is longer) but to just touch on the biggest and most frequent categories of offenders:  Please don’t try to diagnose, treat, or fix.  Don’t minimize what is a serious issue with things like, “Cheer up,” or “You just need a glass of wine, a long walk, a good cry.”  Etc.  And DO NOT say you understand if you haven’t been through it yourself.  If all else fails, trust that your friend is doing what he/she needs to get well  – whatever that path may be –  leave the questioning/counseling/advising/treating to their professionals, and just see them, hear them …. and be there.

(Continue to Part Six)

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Music As Therapy, And My New Friends Chad & Ian – Part Four

bipolar

(If you’re coming in late, you might want to read parts one, two, and three first.  Unless you like to start in the middle.  I won’t judge.)

May 31, 2016

Music has played an integral part of my life since I was a little girl.  Whether I was down, or up, or somewhere in between, music moved me.  It inspired me.  It encouraged me.  No matter what I felt, music was there to bring it to the next level.   It brought me joy when I was happy.  It gave me bravery when I was scared.  It comforted me when I was sad.

And if I didn’t want to be comforted, and instead just needed to wallow?  Music was good for that too.

And now, at 42, it still does all of the above.  Whenever I connect with a band or a song or an album I devour it … listening over and over and over until I’ve had my fill.  I crave music.  My soul needs music, the way a man in the desert needs water.  Music is like breathing.  It keeps me alive.  So it should come as no surprise that music has been hugely instrumental  (ha, see what I did there?) in seeing me through the last few difficult months.

I would hear a song that spoke to me, and it would become my anthem.

First, it was “Rise Up”, by Andra Day.

After that, and for the longest time, it was “Bird Set Free” by Sia (who, it should be noted, also has bipolar) The first time I actually heard it was when Dalton Rappattoni (who also has bipolar) sang it on American Idol, and the lyrics just took my breath away.  I listened to her version, and his, on repeat for weeks on end.

On a related note, I’d be remiss if I didn’t mention that Dalton and Sia’s bravery in talking publicly about their disorders were more helpful and inspiring and important to me than I can even say.

Most recently, the band A Great Big World – Ian Axel and Chad King – released a new single called “Won’t Stop Running”.  As soon as I heard it, I knew that that was going to be my new song.

I have adored A Great Big World since they first came out with Say Something in 2013.  Their songs are beautiful and catchy – the kind that just reach deep down into your soul, their voices compliment each other perfectly, and they just seem like positive and lovely and genuine guys.  Their songs have been a part of my daily soundtrack for the past three years, and when I taught yoga, I included a GBW song on my playlist every time I could.  Getting to hear them live this year, at a tiny little venue downtown, was one of the highlights of what had been a pretty horrible year.  They are one of my all-time favorite bands, and their concert became one of my all-time favorite concerts.

gbw

I’m a little bit sad that you can’t see Chad’s sparkly pants in any of these photos. They were fabulous.

The song, “Won’t Stop Running” was written about Chad’s journey with MS, but the theme of not giving up was one that is relatable to all of us… no matter what stories or struggles or obstacles we face.  When they realized the overwhelming response they were getting to the song, they started a #wontstoprunning campaign, and invited people to share their own stories on social media.  I was a little bit sad because I wanted to share my story…. but wasn’t sure I wanted to be “out” with it yet.  So I watched while others shared their stories, and Chad and Ian responded here and there, and there were beautiful words of support and encouragement.  I even briefly thought about starting an anonymous Instagram account, just so I could join in the collective group hug.  But then, a couple of days later, they announced that they’d opened an email just for people who wanted to share their stories with them anonymously, and that they’d pick a couple to share.

And so I did.

The next day, I received a lovely and short and sweet and encouraging reply from Chad and Ian (that just happened to come on a really bad day when it was so sorely needed) And then, scrolling through Facebook, I saw that they’d reposted my story.  They posted it on Facebook and Instagram both, where hundreds of people “liked”  it and offered encouragement and kind words and support.  MY STORY!

wontstoprunning1

I was in awe 1) that they did such an awesome campaign for their fans in the first place, 2) that they chose to share my story, and 3) that it felt SO, SO GOOD to be honest about it, even – or especially? – if it was to a bunch of strangers.  I received nothing but support, at a time when I was greatly struggling with the idea of telling even those closest to me, precisely because I didn’t know that I’d receive that same support.

It was huge for me, and it was healing, and it will forever earn Chad King and Ian Axel a special place in my heart.

If you’re struggling with something – anything – I’d definitely encourage you to find the song that speaks to you, too.  If you’re at a loss, feel free to borrow one of “mine” till you’ve found one of your own.  🙂

#wontstoprunning

xo

(Continue to Part Five)

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Bipolar Isn’t Strep Throat. One Step Forward, Two Steps Back – Part Three

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(You can read parts one and two here)

May 30, 2016

Here’s the positive thing about hitting rock bottom:  You’ve got nowhere to go but up.  That thought actually comforted me a lot in the beginning.  I can get better now!  It’ll get easier and easier!  And it’s a nice sentiment for sure, and in some ways it is of course true.  But….. it doesn’t really work like that, despite the people who upon hearing that I had bipolar responded with a chipper – and what felt at the time incredibly dismissive and condescending – “Oh, that can be treated.”  (I realize intellectually that they intended neither of those things.)

And yes it can be treated – although I think “managed” is a better word – but it’s not exactly what you’d call straight-forward.

If you have a minor medical illness, say strep throat, you have a fairly predictable course of symptoms, followed by a fairly predictable recovery.  Barring any complications or special circumstances, you start taking an antibiotic.  Two days later you’ve started to feel quite a bit better.  By five days, you feel almost like your normal self.  By eight days you feel so much better that you start to forget you were even sick, and you have to keep reminding yourself to finish out your course of antibiotics.  At day 10, you’ve finished your medication, you feel fine, and your strep throat is a thing of the past.

Mental illness is more complicated than that.

The main medication I’m on will be slowly titrated up to a maintenance dose over the course of about 6 weeks (assuming it’s the right one for me.  So much is trial and error).  What I’m on now in comparison is barely above a placebo.  Other medications may need to be added or substituted or removed as we go.  And what I’m currently learning from  my therapist are strategies.  Things that I have no doubt are going to help me in the long run, but that are things that I need to practice.   Routines I need to build.  Habits I need to form.  Tools I need to use. There is much I need to learn, and many things I need to understand.  There is work – continual, ongoing work – that I’ll need to do if I want to be well.  This is a chronic illness that can’t be cured.  Learning to manage it is a process, and progress won’t always be linear.  It will zig-zag, and it will spiral.

I won’t get better overnight.  One recent article I read said that it took the author a solid four years until he felt that he was really stable…. the thought of which is… daunting.  But even if it doesn’t take four years, it will take time.  Patience is going to be my friend, and I have to learn not to freak out when I have a bad day.  I have to learn to focus on the big picture.

It’s sort of like the worried parents of a selective-eating toddler.  You never want to judge the situation on what they did/did not eat at one meal, because you’ll get a much clearer picture of what’s going on if you look at what they ate during a whole week.  In one meal, there might be five noodles.  Over the course of the week though, you can see, “Hey, he ate an apple!  And an entire yogurt!  And some broccoli dipped in ranch!”

I cannot –  cannot –  compare myself to where I was yesterday, because it’s only a lesson in frustration.  But I can compare myself to a month ago.  I can compare myself to the broken girl who was gutturally sobbing all over the place, begging for…. something, anything, that would take the pain away.

There will be good days and bad days, and that needs to be okay.  I have to say it again:

There will be good days and bad days, and that’s okay! 

I had two pretty lousy days this week, mood-wise, that stood out more than the others.

The first was because I was just really pissed off about how hard it all felt.  I don’t want to go to bed at the same time every night.  I don’t want to exercise.  I don’t want to meditate.  I don’t want to chart my feelings.  I don’t want to take any pills.  I don’t want to go outside if I don’t feel like it.  I don’t want to take another supplement.  It shouldn’t be so hard.  It’s just not fair that it’s so hard.  I want to live like a normal person and not have to think about any of those things if I don’t want to.  I want to stay up till 11:00 and drink a glass or three of wine.  I want to spend my Tuesday afternoons curled up with a good book, not in a therapist’s office, 30 minutes from home, talking about my feelings.

In short, I needed a day to feel sorry for myself.

The second one was set off because frankly, I did something really stupid.  There’s a meme that’s been going around Facebook.   It’s a comparison of two photos.  The top photo is a serene, forest scene with the caption, “This is an antidepressant”, and the bottom photo is a Prozac pill, with the caption, “This is shit.”  Now what I’m personally taking is not even an antidepressant  – it’s not appropriate for my specific situation – but damn if it didn’t piss me off to see anyone else getting shamed for whatever it is they need to take.  I shared the photo on my blog’s Facebook page, NOT for the photo itself, but for a really lovely commentary refuting it…. from a woman who believes in both nature AND pharmaceuticals when necessary.  (I will share it down below, because I really do love what she had to say) Anyway,  I shared this post and in the course of conversation I used the word, “disgusting.”  I said that I thought it was disgusting to call something “shit” that could (and has!) literally played a life-saving role in someone’s recovery.  I concede that it could have been a poor word choice.  A woman commented who’d had a very bad experience with psychotropic drugs – and absolutely, those experiences are out there.  I’m not refuting this.  And there are risks.  And there are unethical doctors.  And there are things to consider.  And my heart goes out to anyone who has had such a bad experience … whether it’s with drugs, alternative treatments, or something else altogether.  She was really offended/hurt/ticked off by my words and told me so.  Not wanting to make things worse, I very, very carefully chose my next words and told her simply that I was glad that she ultimately found what she needed to do to get well.  But that pissed her off even more, because she’d wanted a different response.  She bit back harder, wanting to hurt me (OR, feeling hurt herself, just used me as a convenient outlet in the right place at the right time).  It worked.  I bawled.  And a couple of hours later I pulled down both my Facebook page and my blog itself.   I realized that while I had actually started to enjoy interacting with friends on Facebook again, I was not yet ready for the masses.  My blog/its Facebook page were not going to currently play a part in my getting well.

Fact:  Posting controversial things about mental health treatment when you’re TEN DAYS into your own mental health treatment (and, obviously, still raw and fragile) is not a good idea.

Really though, that woman did me a favor.  The more distractions I could shed to focus on what I really needed to focus on, the better.  One step forward at a time.

Here’s the meme:

antidepressant

And here is Jenny Chiu’s beautiful commentary:

Hello,
I’m Jenni Chiu and this image pisses me off.

May is Mental health Awareness month and I can’t think of a worse way to raise awareness than with this irresponsible image (recently posted by the page Earth. We are one.)

I find the top part of this image to be absolutely true. Meditating outside, breathing fresh air, taking a break from the blue light of my electronics – that all helps my brain and body tremendously.

I find the bottom part of this image to be stigmatizing, and extremely harmful to those who struggle with mental illness. It is irresponsible and IT IS FALSE.

Disclosure: I’m a damn tree hugger. I’ve hugged the hell out of trees. I’ve felt their energy. I’ve sat beneath a redwood and exhaled up into it’s branches, asking it to lift some of the weight off my shoulders. I believe that our modern lifestyles have disconnected some of us from Mother Earth and that by spending time outdoors we are reminded of the balance between us and nature.

Disclosure: There were several years of my life where I was on a cocktail of meds (prozac was one of them) and they literally kept. me. alive.

Depression and anxiety are mental ILLNESSES. Not all illness can be cured with fresh air and sunshine. Sometimes chemical imbalances in the brain need to be supplemented. It may not be the answer for everybody, but it is definitely a life saver for some.

Are meds overprescribed? Possibly.
Can simple lifestyle changes improve our mental and physical health? Certainly.
Should a drug that could keep someone from wanting to die be described as “shit”? Never.

If you manage your mental illness by taking medication, I AM PROUD OF YOU. If you are considering talking to your doctor about medication, I AM PROUD OF YOU.

If you are able to manage a mood disorder naturally, I AM PROUD OF YOU. If you are considering talking to your doctor about weaning off of or changing medications, I AM PROUD OF YOU.

If you have an entire arsenal of mental health tools that include a combination of prescriptions, meditation, art therapy, exercise, sunshine, multiple yoga poses, and several flavors of gelato, I AM PROUD OF YOU.

If you wake up to live another day… If you open your eyes and face those same demons that left you so exhausted the day before… If you continue to grace us all with your existence, I AM PROUD OF YOU…
and I thank you.

When you are drowning and someone throws you a life preserver, you take it. Pay no mind to the people off to the side judging and telling you it’s not the right size or color… or that it couldn’t possibly work. You take it. You grab it and hold on like nobody’s business.

When you get to shore and dry off… then you can take a breath and figure out a plan. Change things up if you need to. Ask for help if you need to…

Anyone telling you not to grab that life preserver is a dick…
and if you accidentally kick them in the face while you’re paddling your way out of the stormy waters, no big deal…

Tell them to go stop the bleeding with the warm breeze outside.

I love you.
Do whatever you need to stay with us.
xoxo

(Continue to Part Four)

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“Have You Ever Tried to Hurt Yourself?”: A Diagnosis and a Plan – Part Two

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(Did you miss part one?  You can read it here.)

May 29, 2016

Here’s a question.  Why would someone with admitted mental health issues spend her entire adult life actively avoiding seeking out a mental health professional?  It seems foolish and well, frankly, really stupid doesn’t it?  But there were reasons that, at the time, seemed to be very sensible.

Here are just a few of them, in no particular order:

  •  The stigma.  People have tried to tell me that there’s no longer a stigma, but they’re wrong.  There IS a stigma.  It is everywhere.  And while people do tend to be more open about their mental health than they used to be, there is still the overarching belief by many that it is a weakness.  That it is a choice.  That they could feel better if they just WANTED TO BADLY ENOUGH, Dammit!  It’s not very conducive to seeking help when a large segment of society wants to treat you like a failure just for walking in the door.
  • The woo woo stuff.  The few people that I know who’ve talked about therapy or counselors have been very into sort of new age, touchy-feely, get in touch with the Goddess within sort of thing, and I had no interest in that.  I wanted straightforward, practical advice, not to be told I needed to hug my inner child. (Disclaimer:  I have no issues with other people wanting/needing/connecting to that approach.  It’s just not for me.)
  • I had a bad experience with therapy as a teen.  In hindsight, I guess it wasn’t a bad experience per se, but it was unpleasant.  To begin with, I was there against my will… a mandatory family thing when my parents took in a foster child.  I HATED IT.  Hated the questions, hated the pressure, hating being expected to talk about my feelings when I just Wanted. To. Be. Home.  In my room.  Reading a book.  Not in a weird uncomfortable room with this total stranger who kept asking me questions…. questions that I learned to begrudgingly answer, because if I didn’t my mom answered for me (with how she thought I’d respond) which ticked me off and made the whole thing worse.
  • I didn’t know what to expect.  With the exception of the people in #2, hardly anyone ever talks about this aspect of their lives.  I mean, it’s private, and I get that, but more openness would be so very helpful to those who are new to the idea.  I had absolutely no idea what to expect, and the unknown – particularly when it comes to something as sensitive and personal as  your mental health – is scary and daunting, which brings me to:
  • It was overwhelming and scary.  Even – or especially – when you know you’re at a point where you need professional help (and by all means, I was in that place for a long time), taking the step of actually researching different places/providers (when just getting out of bed is a lot of freaking work), calling someone (when you’d rather suffer a slow agonizing death in the talons of a velociraptor), actually driving to a place and having to see someone (when you’re not even up to seeing your best friends), AND having to face and talk about the messiest, scariest, most personal parts of your psyche with a total stranger is really, really, breathtakingly HARD.

Alas, despite all of the above…. I knew it was time.   So I sucked it up, I made some phone calls, and I found a place that could get me in right away.  I knew that 1) I needed to start with a proper diagnosis, so I went straight to a psychiatrist, and 2) a multi-faceted approach was important, so I chose a facility that offered psychiatric care, therapy, general medical care, and an overall holistic view on treatment.

And to make a long story short(er), May 10th ended up being one of the most important days of my life.  It was weird and uncomfortable and scary… but important.   Both people I saw (a psychiatrist and a licensed counselor)  were professional and kind and reassuring and thorough – without veering into the overly caring/condescending behavior that drives me so absolutely batshit crazy.  The bipolar diagnosis was a fairly straightforward one, and I do not mean in any way that it was rushed, or one that they came to quickly.  They asked a lot (a LOT) of questions, they sought clarity, they asked me to word things in different ways when they needed more information.  But what it ultimately comes down to is symptoms, and I read like a text book.

As for my own personal views on the experience?  It was HUGELY powerful.   The simple act of being able to answer questions like “Have you ever tried to hurt yourself?” with honesty… in a non-judgemental environment where no one is shocked, or horrified or phased in any way…. a place where they’ve heard it all before, and are trained to simply listen, and ultimately to help you… It was freeing, and it was healing, all by itself.  And to have a diagnosis?  There were other emotions, that I’m sure will continue to come and go, but in the moment it was pure relief.

And I mean, I knew.  I’ve known it was bipolar for a long time.  But to HEAR it;  to be able to begin treating it;  to be able to create a specific plan to get well;  to finally move FORWARD…  It gave me more hope than I’ve had in a long, long time.  I cried the whole way home that day, which is far from an unusual practice for me, but this time they were largely tears of relief.

The immediate plan was – and is – just to get me stable.  I was prescribed some appropriate medications for my specific situation (a brief word about medications, if I may:  They were, for me, absolutely the right answer for this phase of my treatment.  Will they always be a part of my treatment?  Possibly.  Maybe even likely.  Bipolar is tricky.  I feel no shame in taking them, and no shame in evaluating – and continuing to evaluate –  the role they may or may not play in keeping me well.)  I was also given a lengthy – but somehow not overwhelming – list of homework:  practical things I can do to supplement my medication, and help me work towards getting better.  Which is exactly what I was wanting, and needing.  I’ll see my psychiatrist monthly for now, and my therapist (who is wonderful) weekly.

Eventually I’ll be living my life, learning to control it instead of letting it control ME.  But for right now, this IS my life.  Getting well, getting stronger, learning to live NOT as a “bipolar person”, but as the same complicated, multifaceted, creative, perfectly imperfect person I’ve always been, who also happens to have bipolar.

(Continue to Part Three)

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Essential Oils Don’t Cure Bipolar: A Coming-Out Story – Part One

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I don’t know how much longer I can fake it
That it’s all alright, that I can do this alone
And I know that life is what you make it
But it’s hard to see stars when you’re always caught in the folds

Every night in my mind it’s a fight
But I won’t stop dreaming
‘Cause this isn’t over
It’s never over

Facing forward
Lights out
I won’t stop running
Falling backwards
Hands tied
I won’t stop running
I’ll take another sunrise
Another hand to hold tight
This isn’t over
I am way too young and I won’t stop running

~ “Won’t Stop Running”, Great Big World

It is a Saturday as I write this;  May 28th, 2016.  It seems important that I note that, because when or if this story is ever shared, I know it’s one that will need to come in bits and pieces over time, not as a one-off post.  In a way, what I’m about to write about is the culmination of what’s actually been going on for years (decades, if I’m being honest) but in many many others it is just the very beginning baby steps of what will become a lifelong journey.

I have bipolar disorder.

I’ve been practicing saying that, even if mostly inside my own head.  I say it very well, don’t I?  Hello, my name is Jennifer and I have bipolar disorder.  Did anyone else just hear Richard Gere in Pretty Woman when I said that?  “Hello, my name is Mr. Lewis and I am very angry with my father.  It cost me ten thousand dollars in therapy to be able to say that sentence.” 

I haven’t (yet) spent ten thousand dollars in therapy, but I am actively going to therapy, which in and of itself is… unexpected.

But I’m getting way ahead of myself, and should really start at the beginning.

It was a cold and snowy day in 1974 when I was born …  KIDDING!  Well, only partly kidding, because it was a cold and snowy day when I was born.  I was born during a snow storm in fact.  That’s completely irrelevant to the story though.  Except that now that I’m thinking about it, it’s actually pretty poetically perfect that I was born during a storm.  I wouldn’t be ME if I’d been born on a calm, quiet, balmy day in June.

I’m just not the calm, quiet, balmy type.

I’ve always been open about my issues with depression and anxiety … and when I say “open”, I mean I’ve written about it a grand total of a whopping 4 or 5 times (out of 1,000 posts) over the course of the 10+ years that I’ve maintained this blog.  But while I was always as raw and honest as I could manage at the time, those posts only told a part of the story.  They were tentative.  Testing.  Dipping my toes in the water as it were.  I feel like I shared a great deal, but I subconsciously held back at least as much as I revealed.

I’m tired of holding things back.  My only personal goal right now is to get myself well, and I believe that part of that process is going to be total, uncensored honesty.

This spring I had a breakdown.  “Breakdown” is a weird word (one that’s a way too often and flippant word of hyperbole) that doesn’t convey the severity of what happened to me, but it’s the only word I’ve got.   As was my usual pattern, I’d just come down from feeling AMAZING. Life was so painfully beautiful it made me cry.  I’d been full of energy.  Full of grand ideas.  Full of huge plans.  I was going to write another book.  I was going to expand my blog.  I was going to start more blogs.  I spent hundreds of dollars on online courses to teach me how to do exactly that.  I was going to CHANGE THE FREAKING WORLD.    I felt like I could do absolutely anything.  And then….. I didn’t.  And then I got depressed.  And then I got really depressed.  And then I wanted to die.  And then, in the middle of taking the 8 year old to play rehearsals, and the 12 year old to football practice, and taking care of the kids and the house and the pets and everything else that comes with adulting, I had a breakdown.  To put it into perspective, the only reason I didn’t end up in the ER was that I found a psychiatric facility that could get me in for an evaluation right away.

Only a couple – less than five – trusted people knew how much I was truly struggling.  Even then, I spared them the gory details.  The little bits I did share here and there though were more than enough encouragement for well-meaning advice.  I just needed to exercise.  I needed more sleep.  I needed to change the way I ate.  I needed to use essential oils.  I needed more supplements.  I tried really hard not to be offended – and deeply, deeply frustrated – because I was exercising.  I was eating well.  I was getting sleep.  I was taking appropriate supplements.  And essential oils?  I tried pretty much all of them that were supposed to be helpful.  Daily.  But the thing is, motivation is great.  Exercise, sleep, and vitamins are great.  But there are some things they Just.  Don’t.  Cure.  I couldn’t fix it.  Sheer willpower was not doing it.  And it was insulting and minimizing every single time someone suggested otherwise.

It was reminiscent to the end of my journey with my gall bladder.  It was full of stones and sludge, it was starting to get inflamed, and there were stones lodged in the common bile duct.  I was due to have it removed, but then it started to get infected.  I ultimately had an attack that lasted about 72 hours, and in desperation called the surgeon’s office for advice.  The overly cheerful woman on the phone told me, “Oh you’ll see a big difference if you avoid things like fried foods.”  Fried foods?  Was she kidding me?  I hadn’t been able to eat ANY fat for several months, and hadn’t been able to keep down anything – at all – for days.  And she was talking to me about fried foods?  I ended up in the ER, where I checked in for a five day stay, one emergency operation, one endoscopic procedure, and a truckload of necessary medications.

She was being helpful to the best of her ability, but I didn’t need to be told to avoid fried foods.  It was so beyond that point.  What I  needed was intervention.  And in this case, I didn’t need to use essential oils.  It was so beyond that point.  What I needed was intervention.  It wasn’t that I was hanging on by a thread.  My thread WAS GONE.  I had no more thread, and I was hanging over a precipice.  The only recourse I had left was to seek the help of a professional.

So I did.

And it was the hardest, and scariest, thing I’ve ever done in my life.

(Continue to Part Two)

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Today, I Climbed A Mountain

*Full disclosure* I actually climbed the mountain yesterday, but today flowed better. Also, it wasn’t really a “mountain” mountain. It was more like a hill.  Okay, technically it was rocks. I climbed a pile of rocks.

Now that we have that out of the way…

I climbed a mountain yesterday, and it was a long time coming.  May 3rd is just a few weeks away, and it marks the one year anniversary of when I finally went to the ER when the symptoms I’d been experiencing for months reached the point of unbearable, and thus began a year of the worst health (both mental and physical) I think I’ve ever experienced.  It was chest pains, lower back pain, and nausea that finally made me act, but it was crazy relentless unexplained bruising, swollen lymph nodes in my clavicle – and eventually in a whole bunch of other places, – chronic flu-like symptoms, exhaustion, dizziness, and a racing heart that would confound my doctor and send me all over the city to no less than a dozen specialists.

In hindsight, it was most likely a panic attack that I had had that night we went to the ER (the first of MANY such panic attacks over the past year).  We’d gone out that evening to watch an arena football game, and I already wasn’t feeling well when we left the house.   The fear of any sort of medical event happening in public prompts my anxiety to kick in, and anxiety prompts my body to freak out, and a freaked out body does bad, bad things.  The worst part of the evening, besides the fact that it took the EMTS five tries to get the IV placed, was that my then 7 year old asked Mike if I was going to die.   I feel guilty about that, while simultaneously telling myself that it wasn’t my fault.  Could I have willed myself better if I’d tried hard enough?  I don’t know.

Chronic illness and pain (most of which is still unexplained, though some can finally be attributed to disc issues) is exhausting.  And when I say, “exhausting”, I don’t mean very tiring.  I mean it sucks the actual life out of you, to the point that you’re a shell.  A human shell that can intellectually understand that things could be worse and that there is much to be thankful for…. but who is too lost in the muck and the mire to acknowledge it.

What I’ve realized over the past few months though – again, through the magic of hindsight – is that it isn’t the physical symptoms that have been my undoing.   The much greater burden, beyond a shadow of doubt, is the depression and anxiety.  I’m not a stranger to either one, but the past year has seen them both reach heights that I didn’t know were possible.  Depression made me not care, about anything.  Anxiety made me care too much, about everything.  Too much, and not enough, all at the same time.  One made me unable to get out of bed, the other made me too afraid of being alone with my own thoughts not to.  In the past 12 months, I’ve gained and lost and gained again the same 30ish pounds, partly because eating/not eating helped with some of my physical symptoms, but mostly because I’m still that damaged 16 year old who believed that food – either restrictive, careful monitoring like a wrestler trying to make a weight class, OR eating ALL the things, all the time – was the answer.  To everything.

I was hurt by friends who seemed to vanish when I needed them most, and pissed off at friends (and strangers) who offered solutions. Partly because unsolicited advice and people telling me what do make me crazy, but also because – and I’m not proud of it – I was pissed off at everyone.  And everything.

Yes, I’ve been tested for Lyme disease.   Yes, I take vitamins.  Yes, they ruled out lupus.  NO, it’s not all in my head.  Yes, I do meditate. Yes, I understand the importance of sleep and nutrition.  Yes, I’ve tried an elimination diet.  Yes, I use essential oils.  Yes, I’ve looked into non-pharmaceutical solutions.  NO, I am not interested in your naturopathic doctor, or your liver flush, or the special drink that changed the life of your sister’s best friend’s coworker’s cousin’s ex-girlfriend. Leave me alone, leave me alone, LEAVE ME ALONE!    Wait, I can’t do this alone.  I take it back.  I need someone.  Please listen. Don’t leave me alone.  Come back!!!

There was no winning with me.  If they didn’t keep their distance because they didn’t know how to deal with me, I just pushed ’em away myself.  Really, it’s a wonder if I have any friends left at all.

I think one of the most painful paradoxes of depression (really, of mental illness in general)  is that it is excruciatingly difficult to interact with, to talk to, to be physically touched by others, at least in an authentic way …. and yet in equal measure lonely and terrifying to live in its self-created world of isolation.

I don’t believe that my depression and anxiety caused my physical symptoms, and I don’t believe that my physical symptoms caused my depression and anxiety. But mental health and physical health are of course irrevocably yolked together, and as such I know that any attempts to address either one need to be multi-pronged.

Which brings me (finally) back to my mountain.

I have a friend who posts lots of pictures of her hikes… these amazing day-long adventures up in to the mountains (mountains-mountains) all over Phoenix and its surrounding cities.  I keep telling her – in my double-life, put-a-smile-on-my-face-and-pretend-I’m-not-falling-apart-inside alternate reality – that we should go hiking together sometime.  But in reality, I am not able to do that right now. Side note:  In yoga teacher training, which now feels like a lifetime ago, we had to give our teacher 25 cents every time she caught us saying, “I can’t”  After losing a few dollars each, most of us broke the habit.  Instead, we were told to say, and think, “Not today.”  It’s not that we CAN’T do it, it’s just that we can’t YET do it.   That stuck with me in a major way.  Lengthy mountain hikes are not my reality today.   Both because of my physical state (simple walks around the block render me out of commission for a day or days afterward), and because of the real possibility of a sudden mountainside panic attack that would leave me begging her to just go on without me.

But I really do want to start hiking again.  The desert is my happy place.  I can breathe easier there than anywhere else.  The solitude and the wide open spaces feel healing, not oppressive.  In fact I’ve pretty much convinced myself if I ever moved back to New Hampshire (or anywhere else surrounded by trees), that I would effectively suffocate.   My mental health thanks me whenever I venture out into the desert.  Plus, I miss my old butt  regaining a higher level of physical fitness is good not just for my body, but also for every other area of my life.  I know this.  I do.

And still, it took me a month of pep-talks to do it.  There’s a nature preserve that’s a five minute walk from my house, and I decided that I would start there. I’d gone for walks on its trails a few times in the past several weeks, but it had been years since I’d climbed to the top of its not-quite-a-mountain.  It suddenly became really important that I do so, as a literal AND symbolic first step.  But first I had to get there.

It’s way too hot.

It might hurt.

I don’t have anything appropriate to wear.

What if I trip on the loose rocks and fall and hit my head and knock myself unconscious?

What if I’m not knocked unconscious, and think I’m fine, but later suffer a brain bleed?

What if I’m near a drop-off and  get light-headed and can’t sit down fast enough to keep from toppling over the edge?

What if I forget to pay attention to where I’m walking and I startle a rattle-snake who thinks he needs to bite me?  (In my defense, of the three live rattlesnakes we’ve come across in the ten years that we’ve lived in Phoenix, one of them was at that very park)

What if I don’t bring enough water and I get dehydrated and can’t go on?  We like to joke about it because of the quote in The Breakfast Club, but I really do have a low tolerance for dehydration.

What if I lose my cell service at the top, and have a medical emergency and can’t call anyone for help?

Etc.

There were a million reasons not to go, and two really really good ones to suck it up and make myself do it.  I deserve to practice self-care.  My kids deserve a healthy mother.  All the people who’ve suffered the collateral damage of my unintentionally treating them like shit for the past year deserve some atonement.  (I guess that’s three reasons.)

Hiking to the top of that ridge wouldn’t cure me.  But it would be something.

So I made myself go, and with each step I repeated a mantra that was more feelings than words.  If it had had words, they wouldn’t have been sweet and flowery, but more like:

Screw you, depression.  Screw you, anxiety.  Screw you, bad discs and chronic migraines and muscle pain and achy joints.  Screw you fibromyalgia or chronic fatigue syndrome or whatever the hell else they want to call my mystery ailment this week.  You don’t get to make the decisions for me.   Not today.  All the way to the top, and all the way back down again.

I wish that I could conclude this post with a mountaintop epiphany, or a defining moment of catharsis.  But, you know… sometimes life is epiphanies and defining moments, and sometimes life is just a red-faced, slightly overweight, sweaty middle-aged mom scrambling her way to the top of a rocky hill in Northern Phoenix on a random Wednesday in April.  A girl who felt okay for a moment, but who knows she still has a lot of work ahead of her.

It took 45 minutes, to the top and back down.

I climbed a mountain and I lived.

Today my calves hurt, and I find it delightful because I haven’t done any sort of level of activity that would lead to sore calves for an entire year.  Delightful is good.  Delightful is rare.

And now (if you’ve gotten this far, and if you have, thank you) it’s 12:45 in the afternoon, and I haven’t yet left the couch, but I will. Later I’ll take the 12 year old to football, and the 8 year old to the playground, and I’ll smile politely at the people around me, and they won’t know my secret.  They won’t know that I hurt, in so many different ways.  But they also won’t know my other secret.  They won’t know that I decided I’m stronger than all of it.  They won’t know that I climbed a mountain, or HOW MUCH FREAKING EFFORT it took to do it.  I sometimes often tell Mike how hard it is to be me, how hard it is to live inside my brain, and over the past year inside my body as well.  But I wouldn’t want to be anyone else.  I really wouldn’t. Because the wiring that makes me prone to depression and anxiety is the same wiring that makes me passionate, and creative, and someone who loves and lives and feels deeply.  It’s the same part of me that allows me to express myself through writing! I realized a long time ago that it’s kind of a package deal.

I think there’s a sort of poetic and beautiful and bittersweet synchronicity to the fact that my least favorite part of my psyche comes inextricably linked with my favorite.  I wouldn’t take the magic pill (if such a pill existed) to take away all my problems, if the price was also taking away the very essence of who I am.

So I have to resolve – again and again and again – to do the work I need to do to be well, whatever wellness is going to ultimately look like.  I can’t WILL myself well, this much is true.  But I can take steps, both literal and figurative, towards wellness.  I can.

I CAN.

I have the sore calves to prove it.

P.S.  This article is the most apt description of depression that I’ve ever read.  He so eloquently puts into words what I’ve so often tried – and failed – to write myself.

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Monday Musings

West

I have trouble with Mondays.

You’d think that as a stay-at-home parent, Mondays wouldn’t be as difficult.  I mean, it’s not like I have to get up and get out the door for another work week.  But they’re still…. hard.  Having to get back to the real world after having had a partner home all weekend, having to get back to adulting after what was (ideally anyway) a weekend of fun, having to get the housework back under control, and having to finally deal with all the emails and appointments and grownup things I’ve put off as long as I can.  The to-do list looms large, and the energy with which to tackle it is low.

So, I decided to try something new, and purge all the random Monday thoughts that are distracting me into a nice, tidy little blog post.  (And maybe some of you would like to Monday Muse with me??)

Here then are five random things that are cluttering my brain this Monday morning*, and keeping me from Doing All The Things.

1.  I’m even more sleep-deprived than normal, because I was up multiple times with the dog with diarrhea.  (To be clear, the dog has diarrhea, not me)  It might have been five times, but it could have been seven or eight.  I sort of stopped counting after the third or fourth time.

2.  I almost pulled down my Facebook page four separate times this weekend.  I’m working hard to not be so quick with my trigger finger, and instead take a step back for some perspective before I react.  Because ironically, this is a season that I was all set to spend more time on my blog, not less.  And taking out the whole Facebook piece would not have been very helpful in that regard.

3.  I’ve been on an elimination diet for a month now, both as a last ditch effort before I see another doctor who tells me, “I don’t know what the heck is wrong with you, but I’d be happy to refer you to a specialist”, and in response to all the friends and family who keep telling me that I just need to eat better.  For over four weeks now, I’ve had no gluten, no dairy, no sugar, no soy, no nuts, no citrus, no caffeine, no alcohol, no red meat…  Basically, I’ve purposely been avoiding some of my very favorite things.  The impact it’s had on my symptoms?  Zero. No change whatsoever.  Does that sound grumpy?  It’s because I’m grumpy.  I blame it on the lack of caffeine.  And frustration.  But mostly the caffeine.

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4.  I’ve been walking.  I can’t do anything more strenuous than walking at the moment, and actually, there are for sure days where even walking is too much. But if I can do it, I do it.  I like walking, especially if I can do it in the desert.  A half an hour alone in the desert with my headphones, and I’m like a new person.  I like to walk with Mike too, but since walking’s my therapy, I tend to vent slash complain slash verbally spew on him when we’re walking so it might not be as fun for him as it is for me.

5.  20160314_174904I had a problem.  I was running out of space for my books.  I cull them as often as I can, but you know, some books you just NEED to keep.  I told Mike my problem, and last weekend we went to Ikea for a new bookshelf.  I obviously still have a lot of books to transfer over, but I am taking my time, dusting everything off, getting it all organized.  The project has made me sublimely happy.

How nice if all problems were so easy to solve!

*  I started this post at about 7:00 in the morning, and it’s now after 6:00 in the evening.  Because… Mondays.  But tomorrow is Tuesday and I’m home all day.

I have big plans to play Minecraft with my girl, and eventually I’ll start looking at that to-do list.

After a good night’s sleep with hopefully a whole lot less diarrhea.

 

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New Years and Fresh Starts

Snow is so romantic when you haven't seen it for awhile!

Snow is so romantic when you haven’t seen it for awhile!

2015 wasn’t my most favorite year.

There were some big stressors. There was physical pain. There were chronic medical issues. There were dozens of appointments and tests and procedures that accompanied said medical issues. There was depression, its good friend anxiety, and their frequent cohort insomnia.

And of course – absolutely – 2015 had its lovely moments too. It did. But overall, it kind of… well, it bit.

So it was with huge amounts of relief and gratefulness that I welcomed in the new year.

And I realize that it’s kind of silly: The number on the calendar doesn’t change anything. Every day is a new start, if you choose to look at it that way. But the same part of me that will forever be inspired by the mere thought of brand new Trapper Keepers and the smell of freshly sharpened pencils in the fall, will also always be school-girl excited at the official start of another trip around the sun… especially when it comes on the heels of a less-than-stellar year.

So far, 2016 has been good to me!

Last week, I returned from a little five day mini-vacation visiting friends in Michigan. I almost didn’t go. Not because I didn’t want to go (I did, desperately), but because it just felt like it all might be too much, and that the timing might be all wrong. See above about pain and anxiety, et al.

I am so glad I went!  It turns out the timing couldn’t have been more perfect, and it was a lovely way to usher in the new year.

For five days, I got to hit the “reset” button, and focus on nothing but visiting and playing and chatting and being, all with a good friend by my side.

I went to a henna party.

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I like this dream catcher so much, I think I may need to get one as an actual tattoo someday…

I got a new piercing.

I saw my favorite alt rock band on the planet.

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That guitarist in the hat? I gave birth to him.

I drank a lot of Captain and Cokes.

I took a gorgeous walk through the Michigan snow (on my birthday, no less!).


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A word about snow and cold, if I may. I don’t miss it, but I miss the IDEA of it. I miss how beautiful it makes everything look, I miss the crispness, I miss its energy, I miss how alive it makes you feel. It was lovely to visit (especially on my birthday; how cool is that??) and it was lovely to ditch the heavy layers once I landed back in Phoenix.

And now, back home, real life beckons.  Yesterday, I took the 11 year old to the doctor for a sports injury.  Today I go to the dentist for what I’m positive will result in a root canal.  Nothing has changed and yet…. everything has changed, because I got a much-needed break, and with it a new perspective.  I’m genuinely excited for the rest of 2016, whatever it may bring.

TL:DR When your life has gone offline, sometimes stepping away for a few days helps.  A lot. Snowstorms and rock bands optional.

P.S.  My website is going to be down for a few days while I give it a face lift.  Thanks for being awesome and patient.

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Filed under about me, New Years, perspective

Temporary

Photo Credit: Ivo Ivov

Photo Credit: Ivo Ivov

I’ve been sick for the past six months.

I’ll spare you my laundry list of symptoms, both because it’s boring and because I’m so tired of thinking about it, but they concerned my doctor enough to order a CT, an ultrasound, and blood work, and eventually led her to send me to an oncologist. HE was concerned enough to order still more blood work – 12 vials in fact – and a whole-body PET scan.

None of the above gave us any answers.  On paper, I’m the healthiest sick person that ever lived.  My next step is an infectious disease doctor, not because anyone really thinks I have an infectious disease, but because they do the kind of detective work necessary to diagnose these weird and hard-to-figure-out whatever-the-heck-this-thing-is that’s been making my life miserable since last spring.

It’s frustrating feeling terrible and limited every day and not knowing why.  It’s even more frustrating to feel like you’re going through it all alone.  This summer was truly one of the loneliest summers of my life.  And that doesn’t sound right, does it?  Feeling lonely in a house full of six people?  But it’s exactly how I’ve felt. And I’ve learned that feeling alone amongst other people is a far more harrowing feeling than feeling alone when you’re actually… well, alone.  I never feel lonely when I’m by myself.  But when I’m around other people?  I’ve become an expert at it.

And I can never figure out if it’s actually real life  (Is it real?  Have I really created a life with so few people to support me when I need it?), or if it’s simply a product of manifestation….combined and created somewhere in the abyss of physical pain and the inevitable depression that comes with it.

Whatever the case, I’ve been resting there:  Holding on tightly to the simultaneous frustration and safety of my own self-pity.

I don’t recommend it.

I have missed writing so very much (just one of many things I’ve missed in the past several months) but even when I have gotten the energy to sit at my computer, I put my fingers to the keyboard…… and there’s nothing there but a wordless, guttural whine.

Then yesterday I finally heard something that helped, if only a tiny bit.  In a classic case of “the right thing at the right time,”  I was watching a movie with my groom, and what was meant to be entertainment ended up being inspiration.   Between me not feeling well, and him being exhausted from work, and the both of us spending all our spare minutes getting everything tied up for the conference, we’ve been desperately clinging to our lazy Saturday morning movie-while-we-drink-our-coffee dates whenever we can get them.  Anyway, yesterday we were watching this movie, and there was a scene where one of the characters, an angst-ridden teenager, was standing on the precipice of a cliff, contemplating ending his life.  His panicked family had all gathered around, and were literally trying to talk him down from the edge.  They were delivering a fairly standard issue, “you have so much to live for” motivational speech, and eventually told him,

“Shit’s temporary!”*

And in that moment, those words were the much-needed balm to my weary and battered soul. It’s temporary.  It’s ALL temporary.  And yes, I get that there’s nothing new or revelatory about that observation, but it was something that I’d forgotten…. and forgotten so deeply that I didn’t even remember that I’d forgotten it.  I’m always the first person to reassure new moms that their toddler’s frustrating experiments with biting or throwing or shoving things into the DVD player drawer is but a season.  It’s temporary.  Why on earth wouldn’t that apply to adults as well?

Trials are temporary.  Frustrations are temporary.  LIFE is temporary.  And I needed the reminder to sit tight, put on my galoshes, and get out there and dance in the storm.  It’s a season, bringing whatever lessons it’s going to bring.

I feel like I’ve spent so much time chasing things.  Chasing answers, chasing peace, chasing rest.  And I think that sometimes you need to just stop chasing.  Stop moving.  Just stop.  Stop and remember that it’s all just…. fleeting.  I’ll feel better, or I won’t.  But either way, it’s still temporary, because it’s ALL temporary.

I don’t know what’s going to happen next for me, or this blog, or all my plans that have gotten put on hold with my health issues.  But for the first time in a long time, I’m pretty okay with not knowing.  And the next time I’m not okay (because I do know there will be a next time), the next time I give in to the stress and the fatigue and the frustration of it all, I hope I can remember that no matter what it is… whatever negative, stagnant yuck I’m feeling…

that it’s only temporary.

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*(Sorry I said shit.  Sorry I said it again)

 

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I’m Pretty

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Last night when she was getting ready for dance class, Tegan looked in the mirror and said (as matter-of-factly as if she were commenting on the weather),

“I’m pretty.”

“You’re very pretty,” I told her, and the words came easily and confidently, not just as her mother but also as a human being who knows beauty when I see it.

Her statement was so lovely.  So simple, so accepting, as if there were never a question in her mind.  Of course I’m pretty.

And I couldn’t help but think…. when did I stop believing I was pretty?  Did I ever think I was pretty?  Did I think I was pretty when I was seven?  Did someone tell me I was pretty?

All I could remember were the negatives, like holes left from nails in a piece of driftwood.  The surface has long since healed, but the scars remain.

The comments that I was chubby, and (ironically) at other times in my life, too thin.

The reminders about calories, and fat grams, and exercising.

The girl at school who told me was my nose was too big.

The teasing that came when puberty hit, and along with it, horrible skin.

The friend who asked if it made me feel bad that I wasn’t as pretty as my sister.

The other friend who told me I was ugly when I didn’t pull my hair back.

The abusive boyfriend who told me my hair was too long and too poufy, my thighs were too big, and my boobs were too small.  And seriously, when was I going to cut my %&$@! hair?

The coworker who complained that I was stupid (which has nothing to do with physical appearance, but is somehow always there, along with the others)

When did I decide to accept this?  When did I start letting any of it define me?  All I knew was that at some point along the way, it shaped my truth.  It became my internal dialogue.  Did I ever make the conscious choice to CHOOSE to believe it?  Or was I powerless to stop it?   I didn’t know anymore.

“I’m pretty.”

And here is my daughter.  This confident, innocent, beautiful child, who I would do anything to protect.  I am careful – so careful!! – not to verbalize my issues in front of her.  No complaining. No degrading.  No self-deprecation.   When people have told me she looks like me I’ve completely resisted the urge to respond, “Are you kidding? She looks nothing like me.  Look at her, she’s gorgeous!”  And when she looks at me, in her honesty and her love and all her seven-year wisdom and says, “You’re so pretty Mommy”, I smile, and I say thank you. And in that moment… I feel pretty.

But it’s not enough, is it?  To pretend and smile and say the right things and grab the fleeting moments when they come?

I want what she has.  That thing I lost, so long ago.

It’s a lesson she’s teaching me, and will continue to teach me until I get it right.  Not just to feel comfortable in my skin, but to feel fabulous in my skin.  To OWN my skin.  To be able to look back at all those negative voices and say,

“YOU DON’T DEFINE ME.”

I’m working on it.  And if the lessons I’ve already learned, both from Tegan and the boys, are any indication, I’ll get there.  I’ll be able to join her in that mirror, and see a face that’s strong and confident and kind and smart and be able to say,

“I’m pretty”, and mean it.

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